Communicating the benefits and risks of inflammatory bowel disease therapy to patients and families

Joseph A. Picoraro, Joel Rosh

Research output: Contribution to journalReview article

Abstract

Purpose of review Treatment options for inflammatory bowel disease (IBD) have rapidly expanded as the treatment paradigm has shifted from controlling symptoms to reducing lifetime inflammatory burden. Families are confronted with the actual and perceived risks of this ever-expanding array of choices. We aim to review the shared decision-making process in pediatric IBD to ensure an optimal therapeutic plan for the child and their family. Recent findings Mucosal healing is a critical treatment target in pediatric IBD but it may not coincide with clinical symptoms. Evidence-based therapies carry important risks, some of which may be less severe than previously suspected, and a family's understanding of these risks plays a crucial role in how they make health decisions. To form an effective shared therapeutic plan, the physician must incorporate an understanding of the values of both the child and family along with their lived experience of illness. Summary To limit harm and promote health in pediatric IBD, the physician must communicate collaboratively with the child and their family to form mutually understood goals of care-both subjective experiential and objective biological-and appreciate actual and perceived risks of treatment options to effectively educate families and navigate toward the best treatment choices.

Original languageEnglish (US)
Pages (from-to)572-577
Number of pages6
JournalCurrent Opinion in Pediatrics
Volume29
Issue number5
DOIs
StatePublished - Oct 1 2017
Externally publishedYes

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Inflammatory Bowel Diseases
Therapeutics
Pediatrics
Patient Care Planning
Physicians
Health
Decision Making

All Science Journal Classification (ASJC) codes

  • Pediatrics, Perinatology, and Child Health

Cite this

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Communicating the benefits and risks of inflammatory bowel disease therapy to patients and families. / Picoraro, Joseph A.; Rosh, Joel.

In: Current Opinion in Pediatrics, Vol. 29, No. 5, 01.10.2017, p. 572-577.

Research output: Contribution to journalReview article

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